M.E. Support is one of the leading Websites on Myalgic Encephalomyelitis providing information, advice and support. M.E. is little-known and often misunderstood but it is an extensive and debilitating neurological disease. It is also referred to as Myalgic Encephalopathy, Chronic Fatigue Syndrome (CFS), Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) or Post Viral Fatigue Syndrome (PVFS).
My name is Louise Sargent and I launched M.E. Support in 2001, having been living with Myalgic Encephalomyelitis for nine years, in a bid to raise awareness and help fellow sufferers. This is a UK-based Website providing worldwide information to hundreds of thousands of visitors each year. I manage M.E. Support daily with the help of a small but invaluable team of Volunteers. I have also been able to expand offline, such as advising the media on M.E. and guiding medical professionals.
M.E. Support operated at mesupport.bigstep.com for four years before moving here to mesupport.co.uk. The site is split into six sections but you might like to start with the article M.E. My Story. If you are looking for International May 12th Awareness Day products, such as M.E. Awareness Ribbons, please visit the M.E. Support Online Shop. Please do not hesitate to Contact Me anytime or you may like to join the Facebook Page.
M.E. Support Ambassador Rochelle Hanslow writes, “When I was diagnosed I scoured the internet looking for reputable information about the illness. I found M.E. Support and I am so glad that I did. There are lots of Websites which bombard you with possible cures and confuse you more. M.E. Support not only allows you to read real stories from fellow ‘Spoonies’ but gives you solid, researched and well laid out information." She adds, "Louise has put in so much to make sure the Website not only supports but raises awareness. You can contact the team at any time and can even do it via social media platforms without hassle!”
M.E. Support will be celebrating its 20th Anniversary in April 2021. My aim is for M.E. Support to have achieved charitable status in time for this wonderful milestone. This will secure the future of M.E. Support and provide a more diverse platform to work from. As a charity, M.E. Support will be able to reach a greater audience, along with providing advocacy to those within this growing community. In order to reach this goal, my team will be helping me in the following three areas:
- Expanding our online presence and launching offline services, e.g. a postal newsletter.
- Developing media and public relations to reach more patients and increase the public’s knowledge of M.E.
- Establishing physical and financial connections through volunteers, sponsors, donations and sales.
I have enjoyed developing M.E. Support and it has been a pleasure to help and advise others. It has certainly been difficult at times, with so-called 'M.E. politics' and verbal abuse by non-believers, although I have never questioned my work here and feel proud of what I have achieved. I would like to take this opportunity to thank you, whether you are a new visitor or an old faithful, for your much appreciated and valued support. I also thank wholeheartedly each and every person who has helped me with M.E. Support over the years. Lastly, but by no means least, thank you to my family and friends for their love and encouragement.
M.E. Support is dedicated in memory of those who have lost their lives to Myalgic Encephalomyelitis; 'Our memory is a more perfect world than the universe: it gives back life to those who no longer exist.'
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Lyme Disease has received a lot of media coverage this year. The subject is covered on M.E. Support in Lyme Disease / Borreliosis & M.E. in the United Kingdom.
For additional help and support, please visit Lyme Disease Action (UK) or the American Lyme Disease Foundation.
M.E. My Story is a personal account of life with this
debilitating neurological disease.
This revealing article was published in 2001 and recently updated.
Behind the Scenes
A monthly round-up of life
Behind the Scenes here at M.E. Support!
The M.E. Support Online Shop provides a range of products including Awareness Ribbons, Silicone Wristbands, Window Stickers and Cotton Tote Bags.
You can order items quickly and conveniently using secure payment facilities. M.E. Support welcomes customers from all over the world.
M.E. Support Gift Vouchers are available in multiples of £5 and redeemable online.
The M.E. Support Facebook Page is a moderated space on the social networking service.
This is an ideal place to read and comment on the latest news, discuss and seek advice on issues affecting M.E., along with getting to know like-minded people.
Simply log in or sign up for free and click 'Like' to join this popular service.
Please take a moment to subscribe to the free M.E. Support Newsletter.
This monthly e-newsletter
provides global research and news, along with highlighting M.E. Support updates and offers.
Every year, M.E. Support holds a competition to send someone flowers for International May 12th Awareness Day.
Who would you nominate to receive this surprise gift? Please visit the M.E. Support Competition page for further details.
How to Help
M.E. Support currently has a number of Volunteer opportunities
M.E. Support gratefully receives
Donations and welcomes corporate, family or individual
M.E. Support will be launching Fundraising Packs and Media Kits in spring 2016.
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18 Nov 2015
David Tuller PACE Investigation
5 Nov 2015
Short CMRC Conference Report
Diary Dates 2016
Int. May 12th Awareness Day
11th Int. ME Conference
1-3 June 2016, London
Severe ME Day
8 August, Annually, UK
The following articles are being written or updated and will be published in the near future:
"my-AL-jik" means muscle pain.
means inflammation of the brain and spinal cord.
What is a Spoonie?
A 'spoonie' can refer to any individual who suffers from a chronic illness.
The Spoon Theory was written
by Christine Miserandino and
explains what it is like to live with a chronic illness. The theory uses a metaphor of spoons to turn energy into a measurable concept.
Quote of the Month
The worst thing you can do to a person with an invisible illness is make them feel like they need to prove how sick they are.
Get Safe Online
Get Safe Online is the UK's leading awareness resource helping protect people, finances, devices and businesses from fraud, abuse and other issues encountered online.