M.E. Support is one of the leading websites on Myalgic Encephalomyelitis providing information, advice and support. M.E. is little-known and often misunderstood but it is an extensive and debilitating neurological disease. It is also referred to as Myalgic Encephalopathy, Chronic Fatigue Syndrome (CFS), Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) or Post Viral Fatigue Syndrome (PVFS).
My name is Louise Sargent and I launched M.E. Support in 2001, having been living with Myalgic Encephalomyelitis for nine years, in a bid to raise awareness and help fellow sufferers. This is a UK-based website providing worldwide information to hundreds of thousands of visitors each year. I manage M.E. Support daily with the help of a small but invaluable team of Volunteers. I have also been able to expand offline, such as advising the media on M.E. and guiding medical professionals.
M.E. Support operated at mesupport.bigstep.com for four years before moving here to mesupport.co.uk. The site is split into several sections but you might like to start with the article M.E. My Story. If you are looking for International May 12th Awareness Day products, such as M.E. Awareness Ribbons, please visit the M.E. Support Online Shop. Please do not hesitate to Contact Me anytime or you may like to join the Facebook Page.
M.E. Support Ambassador Rochelle Hanslow writes, “When I was diagnosed I scoured the internet looking for reputable information about the illness. I found M.E. Support and I am so glad that I did. There are lots of websites which bombard you with possible cures and confuse you more. M.E. Support not only allows you to read real stories from fellow ‘spoonies’ but gives you solid, researched and well laid out information." She adds, "Louise has put in so much to make sure the website not only supports but raises awareness. You can contact the team at any time and can even do it via social media platforms without hassle!”
M.E. Support will be celebrating its 20th Anniversary in April 2021. My aim is for M.E. Support to have achieved charitable status in time for this wonderful milestone. This will secure the future of M.E. Support and provide a more diverse platform to work from. As a charity, M.E. Support will be able to reach a greater audience, along with providing advocacy to those within this growing community. In order to reach this goal, my team will be helping me in the following three areas:
- Expanding our online presence and launching offline services, e.g. a postal newsletter.
- Developing media and public relations to reach more patients and increase the public’s knowledge of M.E.
- Establishing physical and financial connections through volunteers, sponsors, donations and sales.
I have enjoyed developing M.E. Support and it has been a pleasure to help and advise others. It has certainly been difficult at times, with so-called 'M.E. politics' and verbal abuse by non-believers, although I have never questioned my work here and feel proud of what I have achieved. I would like to take this opportunity to thank you, whether you are a new visitor or an old faithful, for your much appreciated and valued support. I also thank wholeheartedly each and every person who has helped me with M.E. Support over the years. Lastly, but by no means least, thank you to my family and friends for their love and encouragement.
M.E. Support is dedicated in memory of those who have lost their lives to Myalgic Encephalomyelitis; 'Our memory is a more perfect world than the universe: it gives back life to those who no longer exist.'
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It is with great pleasure that I announce that this year, 2016, marks the 15th Anniversary of M.E. Support.
Please take a moment to read the Anniversary Statement and join me in celebrating this wonderful milestone.
Lyme Disease has received a lot of media coverage recently. The subject is covered on M.E. Support in Lyme Disease / Borreliosis & M.E. in the United Kingdom.
For additional help and support, please visit Lyme Disease Action
(UK) or LymeDisease.org (USA).
I recently had the honour of being interviewed by M.E. Support Ambassador, Rochelle Hanslow.
Never Give Up provides some insight into my life and work with Myalgic Encephalomyelitis.
The M.E. Support Online Shop provides a range of products including Awareness Ribbons, Silicone Wristbands, Window Stickers and Cotton Tote Bags.
You can order items quickly and conveniently using secure payment facilities. M.E. Support welcomes customers from all over the world.
M.E. Support Gift Vouchers are available in multiples of £5 through PayPal. They are valid against any items in the M.E. Support Online Shop. The vouchers never expire and can be used as full or part payment.
You can send a voucher to the recipient via e-mail or print a paper copy to give them in person. The voucher will arrive complete with instructions on how to use it. Please click the button below to customise your voucher and then proceed to checkout.
The M.E. Support Facebook Page is a moderated space on the social networking service.
This is an ideal place to read and comment on the latest news, discuss and seek advice on issues affecting M.E., along with getting to know like-minded people.
Simply log in or sign up for free and click 'Like' to join this popular service.
Please take a moment to subscribe to the free M.E. Support Newsletter.
This monthly e-newsletter
provides global research and news, along with highlighting M.E. Support updates and offers.
Every year, M.E. Support holds a competition to send someone flowers for International May 12th Awareness Day.
Who would you nominate to receive this surprise gift? Please visit the M.E. Support Competition page for further details.
How to Help
M.E. Support currently has a number of Volunteer opportunities
M.E. Support gratefully receives
Donations and welcomes corporate, family or individual
Would you like to promote a product or service? Reach potential customers with an Advertising package from M.E. Support.
M.E. Support will be launching fundraising packs and media kits later this year.
Diary Dates 2016/17
12th Int. IACFS/ME Research & Clinical Conference
27-30 Oct., Florida USA
Collaborating for Change
10 Nov., London
Int. CIND Awareness Day
12 May, Global
7th Biomedical Research into ME Colloquium
31 May - 1 June, London
12th Int. ME Conference
2 June, London
Severe ME Day
8 August, UK
#MillionsMissing M.E. Protest
CFS/M.E. Research Collaborative
Invisible Illness Awareness Week
25 Sept. - 1 Oct., Global
The following articles are being written or updated and will be published in the near future.
- A Self-Help Guide to Managing M.E.
- Complementary & Alternative Medicine
- Facing M.E. With Faith
- I'm a Fighter
- M.E. is not ME
- Myalgic Encephalomyelitis: Men vs Women
- Myalgic Encephalomyelitis:
Unravelling The Controversy
- My Lessons in M.E., Life, Love & Loss
- Pernicious Anaemia
- Screw M.E.
- The Long Road to Diagnosis
- The War Against ME
- Young People with M.E.
One of the biggest expenses I have with running M.E. Support is the cost of office supplies. I created an Amazon Wishlist so that you have the choice of supporting this cause with tangible items as an alternative to making a monetary donation.
Please consider purchasing an item from the list and Amazon will dispatch it to M.E. Support on your behalf. I currently require the following items and would appreciate any help you can provide:
Through my experiences as an M.E. sufferer and webmaster, I have expanded my knowledge of health related issues, along with gaining skills in multimedia management.
I am currently available to Hire for the following projects:
- Reviews and sponsored posts related to Myalgic Encephalomyelitis for M.E. Support.
- Freelance writing assignments in the area of health.
- Content creation and content curation for websites/blogs and social media.
Author Jason Ellis has been writing fiction for children and young adults for several years. His popular books include The Amelia Maylock series and The Holly Silverstone adventures.
He has just launched his latest book, My Long Journey To Sincerity: Elana Mayne, which is now available on Amazon. The story follows sixteen year old Elana who overhears a secret conversation and witnesses a terrible crime.
Jason has followed my work here at M.E. Support with great interest over the years. He has kindly offered to donate a percentage of the royalties for each copy sold to this important cause.
"my-AL-jik" means muscle pain.
means inflammation of the brain and spinal cord.