International May 12th Awareness Day
The clock is now counting down to International May 12th Awareness Day 2023.
This year, 2022, marked the 30th anniversary of International May 12th Awareness Day. The idea originated with Thomas Michael Hennessy, Jr., the founder of Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases (no longer active). Tom Hennessy was based in the USA but understood that it needed to be an international event; he designated the 12th of May 1992 as the International Awareness Day for the spectrum of illnesses he called Chronic Immunological and Neurological Diseases (CIND).
May 12 was chosen as it coincided with the birth date of Florence Nightingale, the celebrated English social reformer and statistician, and the founder of modern nursing. Nightingale became chronically ill in her mid-thirties after returning from the Crimean War; the M.E.-like illness often left her bedridden during the last 50 years of her life. You will find a more detailed account in A Short History of Myalgic Encephalomyelitis.
Tom Hennessy included Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome and Chronic Fatigue and Immune Dysfunction Syndrome), Fibromyalgia, Gulf War Syndrome and Multiple Chemical Sensitivity under the CIND umbrella. These illnesses, characterised by cognitive problems, chronic muscle and joint pain, extremely poor stamina, and numerous other symptoms, afflict people around the world in alarming numbers.
May 12 efforts have largely been low-key and undertaken by individuals or individual organisations. Due to the mandates of these organisations the awareness efforts have, for the most part, focussed on only one of the illnesses. From the beginning of 1993 various M.E. organisations were behind the idea, and it was subsequently highlighted at the First World Congress on Chronic Fatigue Syndrome and Related Disorders in 1995. This was instrumental in the campaign being adopted internationally for Myalgic Encephalomyelitis. The universal symbol of the Blue Ribbon is worn to spread awareness and support sufferers.
The World ME Alliance, a collaborative of organisations from across the globe, launched World ME Day on 12th May this year. This new initiative aims to bring together organisations and unify efforts to raise awareness and campaign together on Myalgic Encephalomyelitis.
Awareness continues to increase throughout the world, and Severe M.E. Day was launched in 2013 by the 25% ME Group. August 8 is a day to remember everyone who is suffering or who has ever suffered from severe Myalgic Encephalomyelitis. A rainbow was chosen as the emblem for this day to symbolise a bridge from ignorance to knowledge. In recognition of this important event, M.E. Support invites you to light a candle at 7pm local time in memory of those who have lost their lives to Myalgic Encephalomyelitis.
The Myalgic Encephalomyelitis Action Network is a worldwide M.E. patient advocacy group co-founded in 2015 by Jennifer Brea and Beth Mazur. They created the Millions Missing global campaign in 2016, which asks for increased government funding for research, clinical trials, medical education and public awareness.
✞ On Monday 9 September 2013, Tom Hennessy passed away in Florida at the age of 59, after a 25-year battle with Myalgic Encephalomyelitis.
May 12 promotional material and merchandise, including awareness ribbons, are available to order from the M.E. Support Online Shop. M.E. Support Ambassador Rochelle Hanslow writes, "Although it’s important to raise M.E. awareness throughout the year, May 12 is the day our global community unites to have our voices heard. You can do many things to mark the occasion, such as fundraising for a charity, taking part in an awareness campaign, or by sharing your experience with others. The blue ribbon is the universal symbol of awareness and support for people living with Myalgic Encephalomyelitis. Ribbons are available from the M.E. Support store, along with other merchandise in ‘M.E. blue’, which help to raise much needed awareness and funds.”
If you are arranging an event for May 12, I highly recommend organising a screening of Unrest. This award-winning documentary film is produced and directed by M.E. activist Jennifer Brea. Please take a moment to read my Unrest Review which includes the official trailer. If you would like to fundraise for M.E. Support, please read Donations: An Open Letter, or Contact Me to discuss it further. You may Download a free copy of the M.E. Awareness Day flyer for distribution.
You can follow this international event via the M.E. Support Facebook Page. Use the handle @MESupportUK or hashtag #MESUK on your photos and posts to help build momentum for the day. Please also help raise awareness by adding a Twibbon to your profile picture.
If you are a member of the media looking to find out about M.E. Support, learn more about International May 12th Awareness Day, or interview someone with Myalgic Encephalomyelitis, please Contact Me and I will do my best to help with your request.
"Louise Sargent works tirelessly to raise Myalgic Encephalomyelitis awareness, whilst also supporting people living with M.E. and related conditions."