Self-Isolation: Welcome to Our World

Thursday 30 April 2020

In this month’s blog post, M.E. Support Ambassador Rochelle Hanslow reflects on the Coronavirus lockdown. She describes how the greater public can learn about living with restrictions from people who have chronic illnesses.

We can’t get away from it right now: “Coronavirus” or “COVID-19” is quite literally everywhere. It has created uncharted territory for so many of us and most of us will have to change our day-to-day lives in order to do what is right for us and our families. The term “self-isolation” has come out to play and there are so many who have taken to social media to gripe about 12 weeks of no social activity, 12 weeks of not being able to go out and work or go to the gym, 12 weeks where they are, unknowingly, coming into the world of those of us with chronic illnesses. It is a scary time for all of us: no one really knows when this will end; however, the difference between this and chronic illness is that there will be a day in the next few months where the general public will be able to start getting back to a sense of “normality”, whereas chronic illness is here to stay, there is no end.

With this in mind I invite you – the person of full health, the person who has possibly in the past commented and passed judgement on those with chronic illness, the person who thinks our lives are easy and how fabulous it must be to be housebound every day of your life – to open your eyes and see that your life has now stopped involuntarily because of an illness that you didn’t ask for. Yes, I understand it is a very different illness and hopefully in this case, no one reading this is actually suffering the symptoms of it, but the effects of it are just the same: you’ve lost your work life or it has changed significantly, you have lost your social life, you’ve lost the ability to be able to go to the gym, your favourite restaurant, the hairdresser’s, the nail salon. You can’t exercise as often as you’d like to and for some of you, anxiety may be kicking in hard and fast, you may be feeling like a caged animal. You crave nothing more than your “normal life” and already you are frustrated that you can’t have it.

We “Spoonies” deal with this every day: the constant feeling of loss and grieving a life we miss terribly while trying to do all we can with the life we now have as well as dealing with the symptoms our illnesses throw at us every day. There is a positive to this though: we are also proficient in self-quarantine and able to give you all some advice and tips to build your resilience to handle the next few weeks of being at home.

  1. Self-Care Is a Must

    This, for me, has to be the first point as it is crucial to any other part of coping with the trying times that will come in the next few weeks. You must find time to build your resilience and this can only be done if you decide to not be too hard on yourself, not expect too much from yourself each day and realise you are important. Self-care comes in many shapes and forms, whether it is a 15-minute face mask, time to indulge in a good book, doing some baking, relaxing in a bath, listening to your favourite music or watching a good movie. Whatever it is you like to do to chill out and whatever activity makes you happy, do that. I know it’s difficult to get time to yourself if you have a family around right now but even 10 minutes by yourself could be all the difference between you coping and you going into a complete meltdown.

  2. Write It Down

    Mental Health is really important, especially in times like this, as those who don’t usually suffer with anxiety may start feeling it right now. A lot of negative emotions are going to come to the surface, you’re angry, annoyed, frustrated and it’s not good to carry those types of emotions around, especially when you are within the same walls. Now is a good time to write down how you feel in the moment: it gets the emotion out and allows you to make the raw emotion known and then allows you to start rationalising it and processing it. It also means you can come back to it later and start trying to work through it, or even just have it there for the future in case the same issue comes back. It doesn’t have to be complicated or time-consuming, it can be as simple as writing a note on your phone.

  3. Make a Future Plan

    In times like these it is hard to see things getting better and to think of the positives in our lives. Unlike chronic illness, there is going to be an end date to this difficult time and a sense of “normal life” will ensue, so look forward and plan for that. Many of you may have had holidays rescheduled recently and other events you were looking forward to cancelled or postponed. Add them back into your calendar; you have countdown apps that can be used for really exciting events on your phone or go old-school and creative and make a “Dream Board” with lots of positive messages for the coming days and goals you want to achieve once things are safe to do so.

  4. Spend Quality Time Together

    This is really a great opportunity to finally slow down, turn off the TV, tablets and laptops and re-connect with your family, your significant other, your children, whoever you are in your home with right now, or even yourself. It’s a time to get back to basics of board games with your family or even with your partner, card games, a picnic in the living room, building a fort even – get back to childhood! Listen to music and dance in your kitchen or on your bed; just let yourself be happy in the moment. Some may say it’s silly but in times like these you do whatever you can to feel good and I guarantee it’s moments like these that you will always remember. This also applies to those who are at home on their own or with just their animal companions!

  5. Just Do It!

    We’re all guilty of saying “I just don’t have the time to do it” about something in our lives, whether it’s decorating the house, clearing out cupboards, organising paperwork or even finally picking up that new language course you bought last year and haven’t used yet! Now is a time to do it. Be productive. Don’t let this time completely take away your focus. Learn new skills: there are so many online course companies who have great deals on right now. Centre of Excellence is providing all their courses for just £29 with code LEARNATHOME14 and other companies have great deals on too.

  6. Exercise Your Mind and Body

    This one is one of caution in terms of it being a rule for the chronically ill. It’s not always easy for us to exercise daily: our symptoms vary in intensity day to day and on one day we may be able to do light exercise, but not on another. Yoga, Tai-chi, Pilates –these are all great for body and mind and if you do have some mobility issues or joint issues these may help to ease the strain of being in the house. If you are someone who has the ability to be a lot more active then you have programs such as Yoga Burn, which gives you the strengthening and elongating effects of Yoga but the burn of a HIIT workout, or there is Jazzercise, where you can currently get 60 days’ free trial with code 60DAYSFREE at checkout. There are, of course, lots of different videos on YouTube that give you hints, tips and even full workouts you can do at your own pace and for your own difficulty level. There are apps like Headspace and Calm that give you help with mindfulness and help with meditation and quietening your mind which, in a time like this, with all the added stress, can really help to give you balance and focus.

  7. Community and Communications

    We are all missing people right now and for some of you it may be really difficult not seeing friends and family that you usually see on a regular basis. In chronic illness terms, this is something we are used to: we often get isolated by friends and family as we can’t make gatherings and it can be hard to keep up communications. We are fortunate that there are ample messaging services that are free and allow video calls with them too. Facebook Messenger, WhatsApp, Google Hangouts, Skype and FaceTime –these are all great ways to keep you connected with friends and family and let you join in celebrations like birthdays, meaning the family can still see each other while complying with the safety measures put in place. There are a lot of communities online; for example, the community M.E. Support Facebook Page where people can tell their stories and ask questions and support each other. In this time, whether you are classed as high risk or not, it is good to know we are all together in it.

In these unprecedented times, we are all feeling pretty unsure of the future and we are finding ourselves in situations that we never thought about until now. Some of you may be realising that you have been taking certain things and people for granted; you may now be seeing how lucky you really are to be in a country where normally you can just go out and go to a supermarket without worry, without war and famine and fear. There are a few things I’d like you all to keep in mind for now and after we are able to start getting back to our lives:

There are a lot of small businesses, organisations and charities that need your help now and most certainly will after this; please support them in any way you can, whether it be donations, sharing their posts on social media, buying something from their store or where possible, giving a monthly contribution to them. Please support independent bookstores and record stores during and after this time; Hive.co.uk allows you to check your local area for books from independent stores and they can send them out to you. Organisations like M.E. Support need help all year round, as Louise relies on Donations and her own limited funds to keep the website and the support she gives going. Please do have a look at the M.E. Support Online Shop and get your supplies in for M.E. Awareness Day on 12th May.

Please remember when the more “able” of you are allowed to go back to your normal, everyday lives, that there will still be those who are living the life of someone on lockdown every day of their lives. I hope this experience changes people’s thought for the better, that they can realise how you can lose everything in an instant thanks to something so very out of your control, but that one thing can control you and your life.

Lastly, M.E. Support is currently being inundated with messages about the Coronavirus pandemic. There is a plethora of information in the public domain, although Louise’s Covid-19 Information & Advice highlights useful resources and M.E. related links.

Stay safe, stay home and remember that the whole world is in this fight together.

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News

5 Jun 2020
Coronavirus Pandemic
31 May 2020
Are you okay?
19 Apr 2020
Chiari Malformation & Syringomyelia
1 Apr 2020
Anniversary Statement
20 Mar 2020
All-Party Parliamentary Group on ME
10 Feb 2020
Article by Amanda J. Charlton

 
 
 

News

5 Jun 2020
Coronavirus Pandemic
31 May 2020
Are you okay?
19 Apr 2020
Chiari Malformation & Syringomyelia
1 Apr 2020
Anniversary Statement
20 Mar 2020
All-Party Parliamentary Group on ME
10 Feb 2020
Article by Amanda J. Charlton