I have just published a wonderful article by Screw M.E. Founder Jennifer Chittick.
She writes, "I had been bedbound for around a year (give or take a few months), when the idea of Screw M.E. came to me. Or rather, the idea of a Screw M.E. Day came to me. I was still struggling with accepting my new circumstances and miserable at being in bed. One day, I realised with a sigh, that my ‘hospital anniversary’ was coming up – it would soon be two years to the day since I’d been admitted and my M.E. journey kicked up a notch. Half joking, half serious, I messaged my sister (who I’m extremely close to) and said we should do a mock celebration of this special date! I wanted to do something fun and silly to take my mind off it all. Keeping a (somewhat dry) sense of humour had helped sustain me over the past year or so. I suggested a theme: ‘Screw M.E.: Let’s Celebrate with Cake!’ My sister was so excited, she thought it was a great idea! We were soon planning away, determined to banish the M.E. bleakness, even for a day. Our thinking was that, instead of being miserable that I was sick, we’d celebrate the fact that I was no longer in that hellish hospital. We’d have some cake (maybe with a nice cuppa!), take silly photos of ourselves posing and post them online for everyone to see. Hell, let’s rope in all our family and friends and make a day of it!
And so, on 28th March 2010, we enjoyed the very first Screw M.E. Day. It was great fun – all day I was receiving messages and photos, dozens in total, of people who had taken part. My sister’s flatmates, for example, had an informal tea party; my grandparents tucked into their favourite Victoria sponge whilst wearing party hats; and even a friend backpacking round New Zealand made a point of joining in with her new travelling companion. For someone who had felt cut off from the outside world for so long, it was heartwarming to see so many friendly faces band together to help cheer me up and show support.
Screw M.E. Day was really only intended to be a one-off. I hadn’t thought about doing it again (nor had I considered the possibility that I’d still be sick a year later!). But as my next ‘hospital anniversary’ drew near, the subject came up again with my sister and before long, we were planning the next event – this time with the theme of ‘Screw M.E.: Let’s Have Biscuits and Tea!’ Again, it was a great success and a fantastic morale-booster! Going into the third year, I decided to set up an official Facebook page called Screw M.E. …"
You can read Jennifer's full Screw M.E. story in the Articles Index. Do not forget to give her Facebook page a like as well!