Behind the Scenes at M.E. Support
Twenty-six-year old-Amy Voaden writes, ‘“It all started one day when…”. That’s how these things are supposed to start, aren’t they? The real truth is that I don’t know when my M.E. journey started because I don’t really remember living without it. What I do remember is being told to get on with it at nine years old when I complained about a stomach ache or not feeling well at school. What I do remember is suffering pain, sickness and fainting every day as I pushed myself to go to school. What I do remember is the confusion and mental health struggles that came alongside a two-year wait for a diagnosis, only to be told that nothing could be done. What I do remember is how hard it was to slot back into the rollercoaster of teenage existence on the days when I felt well enough. I can’t put all of the blame on M.E., there was actually a range of things that made my childhood and adolescence a difficult time, but my journey up and down the M.E. disability scale has by far had the most significant and undeniable impact on my past, present, and future.’ You can read an extract of her article, The New Normal, in this month’s Blog post.