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I use this space to share personal insights, highlight new site content and topics of interest. I am also available to hire for reviews and sponsored posts related to Myalgic Encephalomyelitis. Guests regularly write for this blog; if you would like to be considered for a post, please Contact Me to discuss this further.

These interesting posts, which range between 600 and 1,800 words, are published on the last day of each month. Please scroll down to read topics from the past twelve months. You will find a selection of popular subjects from previous years in the Blog Archive.

 



Saturday 30 November 2019

M.E. Support Ambassador Rochelle Hanslow writes, ‘It is almost that time of year again, the festive “hustle and bustle” is upon us and since the shops have been, once again, stocking (no pun intended) for Christmas since September, you could easily have become sick and tired of the notion of it already. You are by no means alone. Christmas doesn’t feel as magical as it used to and there is so much more stress and expectation that surrounds it these days in general but doubly for us “Spoonies”.’ Read her guide to Coping with the Festive Season with Chronic Illness in this month’s blog post.

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Thursday 31 October 2019

I have noticed an increase in enquiries from male M.E. sufferers, therefore I’d like to discuss chronic illness from the male perspective. Statistically, M.E. affects more women than men, and in addition, men are more reluctant to talk about their health. Two years ago, an anonymous friend of mine agreed to share his experience with us. His open and honest article is entitled The Invisible Man, and you can read an extract of it in this month’s blog post. I encourage male M.E. sufferers to share their experiences with each other, or to get in touch with organisations if they need support and guidance.

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Monday 30 September 2019

We all know about the importance of healthy balanced living, but it’s easy to lose your way when you’re trying to deal with an illness. I have been hearing from a lot of people who are struggling with their diets, ranging from weight issues to the restraints of managing food intolerances. We are faced with so much nutritional information these days, and with a concerning rise in food fads, we’re at risk of losing the basic rules of healthy eating.

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Saturday 31 August 2019

Twenty-six-year old-Amy Voaden writes, ‘“It all started one day when…”. That’s how these things are supposed to start, aren’t they? The real truth is that I don’t know when my M.E. journey started because I don’t really remember living without it. What I do remember is being told to get on with it at nine years old when I complained about a stomach ache or not feeling well at school. What I do remember is suffering pain, sickness and fainting every day as I pushed myself to go to school. What I do remember is the confusion and mental health struggles that came alongside a two-year wait for a diagnosis, only to be told that nothing could be done. What I do remember is how hard it was to slot back into the rollercoaster of teenage existence on the days when I felt well enough. I can’t put all of the blame on M.E., there was actually a range of things that made my childhood and adolescence a difficult time, but my journey up and down the M.E. disability scale has by far had the most significant and undeniable impact on my past, present, and future.’ You can read an extract of her article, The New Normal, in this month’s blog post.

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Wednesday 31 July 2019

Two years ago, I wrote a blog post about the taboo nobody wants to talk about - Suicide. I continue to receive weekly messages from distraught M.E. sufferers. Sadly, I've also lost several acquaintances through suicide in recent months. Some deaths have made the news, which understandably upset and angered people, but it's important to have their stories heard. It has been over twenty years since I self-harmed and attempted suicide. As uncomfortable as it is to admit, the impact M.E. has on my life means that I continue to struggle with negative thoughts. I have republished my post to raise awareness and hopefully help those in need. Please keep talking to each other and don't forget to ask, "Are you okay?"

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Sunday 30 June 2019

What are the pros and cons of getting a pet when you have a chronic illness? Animal lover and M.E. Support Ambassador Rochelle Hanslow shares her experience with us in this new article. She writes, “The bond you build with a pet is unlike any bond you can build with a human: they show a level of unconditional love, loyalty and companionship that is just beyond human capabilities and it is that that makes having them a huge ray of light to someone with chronic illness, but it’s a journey that isn’t at times without its setbacks.” You can read an extract from her heartwarming and informative article in this month’s blog post.

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Friday 31 May 2019

Back in November 2017, my brother Stuart and I went to our local screening of Unrest, an award-winning documentary film about Myalgic Encephalomyelitis. Jennifer Brea is about to marry the love of her life when she’s struck down by a fever that leaves her bedridden. When doctors tell her “it’s all in her head”, she turns her camera on herself and her community as she looks for answers and fights for a cure. Although it was emotionally challenging to watch, we were pleased to share our views on this groundbreaking film with you. Jennifer has had a tumultuous journey but she recently announced that her M.E. is in remission. I am reposting our review to highlight the complexities surrounding this extensive and debilitating neurological disease.

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Tuesday 30 April 2019

Although it’s important to raise M.E. awareness throughout the year, May 12 is the day our global community unites to have our voices heard. You can do many things to mark the occasion, such as fundraising for a charity, taking part in the Millions Missing campaign, or by sharing your experience with others. The blue ribbon is the universal symbol of awareness and support for people living with Myalgic Encephalomyelitis. Ribbons are available from the M.E. Support store, along with other merchandise in ‘M.E. blue’, which help to raise much needed awareness and funds. In this month’s blog post, M.E. Support Ambassador Rochelle Hanslow reviews my online shop and the products.

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Sunday 31 March 2019

Eighteen years ago tomorrow, my brother Stuart helped me create M.E. Support, having introduced me to the internet. There was limited information about M.E. on the web, and personal experiences seemed to be restricted to forums, therefore I decided to write ‘M.E. My Story’. This was an emotionally challenging process, and I was certainly nervous about publishing it, but messages instantly started arriving from grateful readers. It is incredibly important to share our stories, as they reassure and support fellow sufferers, along with educating the greater public. Here you can read an extract of my updated article, along with a review by M.E. Support Ambassador Rochelle Hanslow.

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Thursday 28 February 2019

I have had Myalgic Encephalomyelitis of varying degrees for the majority of my life, including periods of being housebound and bedridden. Conventional medicine offers us few options, and we’re faced with conflicting advice on living with M.E.; therefore, it’s difficult to know which way to turn. One thing that has struck me is how ‘simple’ management really is, although that doesn't mean it’s easy! Coming to terms with your restrictions and making sensible lifestyle changes are important aspects of self-help. It is imperative that you learn to listen to your body and respond accordingly in order to manage M.E. In addition, it’s important to look after your mental wellbeing just as much as your physical health. You can read an extract of my article, A Self-Help Guide to Managing Myalgic Encephalomyelitis, in this month’s blog post.

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Thursday 31 January 2019

Michelle Mamode was a busy working mother when she became ill and was later diagnosed with M.E. She takes us though her journey and concludes with her insights into living with a chronic illness: “My life has changed. Being ill has forced me to focus on my priorities. I suppose that would be the positive way of looking at things. I try to do the things I really want to do and leave the rest by the wayside. I have tried to find new lower energy activities to replace those I am no longer able to do. I have managed to get back to work in some capacity. But I still have dark days where I lie in bed missing the person I used to be and wishing that I had appreciated my health when I had it. I suppose the trick is to appreciate what I am still able to do and make the most of my new M.E. life. So now, as I reach my fiftieth year, that is what I consciously try to do each day, with differing degrees of success.” You can read an extract of Michelle’s article, Just Being: My M.E. Story, in this month’s blog post.

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Friday 31 August 2018

I recently published an article by Barbara Smith, which has been very popular, and she’s now written this blog post about cotton balls! We all have a way of describing mental clouding; when your brain feels like quicksand, full of fog or wrapped in a ball of cotton. Barbara explains how chronic illness affected her memory and concentration, and the steps she’s taking to clear some of the fluff out of her head!

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News

30 Nov 2019
Coping with the Festive Season
15 Nov 2019
New Articles Published
13 Nov 2019
Griffith University Research
7 Nov 2019
ME/CFS Biomedical Partnership
3 Nov 2019
M.E. Organisations
1 Nov 2019
Badges Back In Stock

 
 
 

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