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I use this space to share personal insights, highlight new site content and topics of interest. I am also available to hire for reviews and sponsored posts related to Myalgic Encephalomyelitis. Guests regularly write for this blog; if you would like to be considered for a post, please Contact Me to discuss this further.

These medium-length posts, which range between 600 and 1,250 words, are published on the last day of each month. Please scroll down to read posts from the past twelve months. You will find a selection of popular posts from previous years in the Blog Archive.

 



Wednesday 31 July 2019

Two years ago, I wrote a blog post about the taboo nobody wants to talk about - Suicide. I continue to receive weekly messages from distraught M.E. sufferers. Sadly, I've also lost several acquaintances through suicide in recent months. Some deaths have made the news, which understandably upset and angered people, but it's important to have their stories heard. It has been over twenty years since I self-harmed and attempted suicide. As uncomfortable as it is to admit, the impact M.E. has on my life means that I continue to struggle with negative thoughts. I have republished my post to raise awareness and hopefully help those in need. Please keep talking to each other and don't forget to ask, "Are you okay?"

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Sunday 30 June 2019

What are the pros and cons of getting a pet when you have a chronic illness? Animal lover and M.E. Support Ambassador Rochelle Hanslow shares her experience with us in this new article. She writes, “The bond you build with a pet is unlike any bond you can build with a human: they show a level of unconditional love, loyalty and companionship that is just beyond human capabilities and it is that that makes having them a huge ray of light to someone with chronic illness, but it’s a journey that isn’t at times without its setbacks.” You can read an extract from her heartwarming and informative article in this month’s blog post.

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Friday 31 May 2019

Back in November 2017, my brother Stuart and I went to our local screening of Unrest, an award-winning documentary film about Myalgic Encephalomyelitis. Jennifer Brea is about to marry the love of her life when she’s struck down by a fever that leaves her bedridden. When doctors tell her “it’s all in her head”, she turns her camera on herself and her community as she looks for answers and fights for a cure. Although it was emotionally challenging to watch, we were pleased to share our views on this groundbreaking film with you. Jennifer has had a tumultuous journey but she recently announced that her M.E. is in remission. I am reposting our review to highlight the complexities surrounding this extensive and debilitating neurological disease.

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Tuesday 30 April 2019

Although it’s important to raise M.E. awareness throughout the year, May 12 is the day our global community unites to have our voices heard. You can do many things to mark the occasion, such as fundraising for a charity, taking part in the Millions Missing campaign, or by sharing your experience with others. The blue ribbon is the universal symbol of awareness and support for people living with Myalgic Encephalomyelitis. Ribbons are available from the M.E. Support store, along with other merchandise in ‘M.E. blue’, which help to raise much needed awareness and funds. In this month’s blog post, M.E. Support Ambassador Rochelle Hanslow reviews my online shop and the products.

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Sunday 31 March 2019

Eighteen years ago tomorrow, my brother Stuart helped me create M.E. Support, having introduced me to the internet. There was limited information about M.E. on the web, and personal experiences seemed to be restricted to forums, therefore I decided to write ‘M.E. My Story’. This was an emotionally challenging process, and I was certainly nervous about publishing it, but messages instantly started arriving from grateful readers. It is incredibly important to share our stories, as they reassure and support fellow sufferers, along with educating the greater public. Here you can read an extract of my updated article, along with a review by M.E. Support Ambassador Rochelle Hanslow.

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Thursday 28 February 2019

I have had Myalgic Encephalomyelitis of varying degrees for the majority of my life, including periods of being housebound and bedridden. Conventional medicine offers us few options, and we’re faced with conflicting advice on living with M.E.; therefore, it’s difficult to know which way to turn. One thing that has struck me is how ‘simple’ management really is, although that doesn't mean it’s easy! Coming to terms with your restrictions and making sensible lifestyle changes are important aspects of self-help. It is imperative that you learn to listen to your body and respond accordingly in order to manage M.E. In addition, it’s important to look after your mental wellbeing just as much as your physical health. You can read an extract of my article, A Self-Help Guide to Managing Myalgic Encephalomyelitis, in this month’s blog post.

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Thursday 31 January 2019

Michelle Mamode was a busy working mother when she became ill and was later diagnosed with M.E. She takes us though her journey and concludes with her insights into living with a chronic illness: “My life has changed. Being ill has forced me to focus on my priorities. I suppose that would be the positive way of looking at things. I try to do the things I really want to do and leave the rest by the wayside. I have tried to find new lower energy activities to replace those I am no longer able to do. I have managed to get back to work in some capacity. But I still have dark days where I lie in bed missing the person I used to be and wishing that I had appreciated my health when I had it. I suppose the trick is to appreciate what I am still able to do and make the most of my new M.E. life. So now, as I reach my fiftieth year, that is what I consciously try to do each day, with differing degrees of success.” You can read an extract of Michelle’s article, Just Being: My M.E. Story, in this month’s blog post.

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Monday 31 December 2018

It is with great pleasure that I announce that next year, 2019, marks the 18th Anniversary of M.E. Support at www.mesupport.co.uk. The simple Homepage went live on Sunday, 1st April 2001 and gradually developed into the extensive website that you see today. If this website or any other service provided through M.E. Support has been of use to you, please consider helping to support and continue this important work.

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Friday 30 November 2018

Heather-Chloe Taylor developed M.E. and Fibromyalgia after having Glandular Fever, which many chronic illness sufferers can relate to, and this is her own personal story. Her opening words are all too familiar: “I find it hard to remember what my life was like before I developed M.E. I don’t remember what it was like to wake up refreshed and pain free, or what it was like to get through a day without needing to rest.” You can read an extract of Heather-Chloe’s article, Where the Journey Begins, in this month’s blog post.

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Sunday 30 September 2018

Chronic illness can vary in multiple ways, and women’s bodies react differently to pregnancy, although there are common questions and concerns. Mother of two and M.E. Support Ambassador, Rochelle Hanslow, has kindly agreed to share her advice on Pregnancy & M.E. You can read an extract of her new article in this month’s blog post.

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Friday 31 August 2018

I recently published an article by Barbara Smith, which has been very popular, and she’s now written this blog post about cotton balls! We all have a way of describing mental clouding; when your brain feels like quicksand, full of fog or wrapped in a ball of cotton. Barbara explains how chronic illness affected her memory and concentration, and the steps she’s taking to clear some of the fluff out of her head!

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Tuesday 31 July 2018

I am receiving a lot of enquiries about managing the summer holidays, which was a subject M.E. Support Facebook Page Administrator Kelly Ledder wrote about last year. In this month’s blog post, Kelly shares more advice on how to cope during the school holiday, and she encourages parents to support each other by sharing their tips.

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News

Page 1 of 2  > >>

31 Jul 2019
Are you okay?
30 Jul 2019
New ME & FM Article
20 Jul 2019
CMRC Meeting Summary
6 Jul 2019
M.E. Organisations
30 Jun 2019
Pets & Chronic Illness
29 Jun 2019
Forward-ME
21 Jun 2019
New Article Published
4 Jun 2019
Keyrings Back In Stock
30 Apr 2019
Biomarker for 'CFS' identified
13 Apr 2019
NIH Conference Videos

 
 
 

News

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13 Apr 2019
CFS/ME National Services Survey
6 Apr 2019
Phase 3 Rituximab Trial
1 Apr 2019
Anniversary Statement
26 Jan 2019
House of Commons M.E. Debate