MESUKblog

 

This blog is written by Louise Sargent, the Founder and Webmaster of M.E. Support, in which she describes life behind the scenes. Louise is also available to hire for reviews and sponsored posts related to Myalgic Encephalomyelitis.

Guests occasionally write for this blog; if you would like to be considered for a post, please first outline the topic of your submission. These medium-length monthly posts range between 600 and 1,250 words.

The next entry will be published on Tuesday 31 July 2018.

 



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Saturday 30 June 2018

finding_the_strength

I recently received a moving article by Canadian Barbara Smith, who was diagnosed with M.E. in 2000. She openly revealed distressing events in her early life, and described the ongoing challenges of living with M.E. Barbara bravely included some upsetting subjects in her article, and I felt honoured to publish her story on M.E. Support. You can read an extract of her incredible journey in this month’s blog post.

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Thursday 31 May 2018

me_mom

How can you make the best choices when living with M.E.? Our Ambassador Rochelle Hanslow describes how becoming a parent has shaped her life with chronic illness. M.E. sufferers around the world have shared their experiences during M.E. Awareness Month, and it’s important to support each other’s journeys and decisions without judgement.

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Monday 30 April 2018

awareness_pack

Although it’s important to raise M.E. awareness throughout the year, May 12 is the day our global community unites to have our voices heard. You can do many things to mark the occasion, such as fundraising for a charity, taking part in the Millions Missing campaign, or by sharing your experience with others. The blue ribbon is the universal symbol of awareness and support for people living with Myalgic Encephalomyelitis. Ribbons are available from the M.E. Support store, along with other merchandise in ‘M.E. blue’, which help to raise much needed awareness and funds. In this month’s blog post, M.E. Support Ambassador Rochelle Hanslow reviews my online shop and the products.

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Saturday 31 March 2018

typewriter

Seventeen years ago tomorrow, my brother Stuart helped me create M.E. Support, having introduced me to the internet. There was limited information about M.E. on the web, and personal experiences seemed to be restricted to forums, therefore I decided to write ‘M.E. My Story’. This was an emotionally challenging process, and I was certainly nervous about publishing it, but messages instantly started arriving from grateful readers. It is incredibly important to share our stories, as they reassure and support fellow sufferers, along with educating the greater public. Here you can read an extract of my updated article, along with a review by M.E. Support Ambassador Rochelle Hanslow.

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Wednesday 28 February 2018

writing

Twenty-three-year-old Rachel Aylward from Sussex has been living with M.E. for ten years. Earlier this month, she wrote a letter to her chronic illness and posted it on her blog, which has been shared widely on social media. I recently had the pleasure of meeting Rachel, and having become ill as a teenager myself, her experience and concerns were all too familiar. Rachel’s letter is a must read for fellow young M.E. sufferers, although anyone with a chronic illness will be able to relate to her words, and it can also give others an insight into living with long-term conditions.

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Wednesday 31 January 2018

make_your_bed
For this month’s blog post, I have decided to write about a book that I’ve just read. Make Your Bed was written by Admiral William McRaven, and in it he describes the lessons he learnt during Navy SEAL training. The ten principles have helped him overcome challenges not only in his career, but also throughout his life. You might wonder how his experiences could have any bearing on living with M.E., but wisdom is universal; practical advice and words of encouragement can help in life’s darkest moments.

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Sunday 31 December 2017

awareness_ribbon

Earlier this month, an M.E. related item appeared in the news which resulted in a heated debate. The global M.E. community is united and strong, yet at times it can be surprisingly hostile. Support and acceptance are vital aspects of managing chronic illness, but with the challenges of a new year dawning, it’s important to remind ourselves of this all the more. M.E. Support Ambassador Rochelle Hanslow followed the discussion, and she now approaches the subject in a more neutral way.

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Thursday 30 November 2017

unrest

Earlier this month, my brother Stuart and I went to our local screening of Unrest, an award-winning documentary film about Myalgic Encephalomyelitis. Jennifer Brea is about to marry the love of her life when she’s struck down by a fever that leaves her bedridden. When doctors tell her “it’s all in her head”, she turns her camera on herself and her community as she looks for answers and fights for a cure. Although it was emotionally challenging to watch, we are pleased to share our views on this groundbreaking film with you.

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Tuesday 31 October 2017

 

dying_to_talk

 

What did you think when you read that title? Some of you might be shocked or think it’s an inappropriate thing to talk about. This is obviously an upsetting topic, but sadly many of you will be able to relate to it. This is my first blog post in six months, and the subject of suicide has been prominent throughout that time. I have received weekly messages from people at their wit’s end, and on a personal note, Iife as a suicide attempt survivor has become increasingly difficult. Are the challenges of living with M.E. reaching an all-time high, or are people becoming more comfortable with asking for help?

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Saturday 30 September 2017

symbol-male

As a series of contributions by guest bloggers draws to a close, I thought we should touch on chronic illness from the male perspective. Statistically, M.E. affects more women than men, and in addition, men are more reluctant to talk about their health. A friend of mine, who wishes to remain anonymous, has agreed to share his experience with us. His open and honest article is entitled The Invisible Man, and you can read an extract of it in this month’s blog post.

Read More...

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Most Popular

Top 5 articles for the week of July 9, 2018:

  1. The Symptoms of Myalgic Encephalomyelitis
  2. Behind the Scenes: Finding the Strength
  3. What is M.E.?
  4. A Self-Help Guide to Myalgic Encephalomyelitis
  5. Myalgic Encephalomyelitis
    Diagnosis, Treatment & Prognosis
     
 
 
 

Trending Topics

Lyme Disease has received a lot of media coverage recently. The subject is covered on M.E. Support in Lyme Disease / Borreliosis & M.E. in the United Kingdom. For additional help and support, please visit Lyme Disease Action (UK) or LymeDisease.org (USA).

I am currently receiving a lot of enquiries about Candida. Please take a moment to read Candida & M.E. by Medical Herbalist Jo Dunbar. You are welcome to contact Jo at her clinic for more guidance.

 
 
 

Unrest Review

My brother Stuart and I went to our local screening of Unrest recently, an award-winning documentary film about Myalgic Encephalomyelitis.

Jennifer Brea is about to marry the love of her life when she’s struck down by a fever that leaves her bedridden. When doctors tell her “it’s all in her head”, she turns her camera on herself and her community as she looks for answers and fights for a cure.

Although it was emotionally challenging to watch, we are pleased to share our views on this groundbreaking film with you.

 
 
 

Featured Product

These lovely enamel Pin Badges have been specially cast for M.E. Support.

This plain blue ribbon design is suitable for Myalgic Encephalomyelitis, Fibromyalgia, Gulf War Syndrome and Multiple Chemical Sensitivity. The badges are 25mm long and measure 14mm at the widest point (image not actual size). They have a nickel finish and a secure clutch pin fitting. These subtle badges are perfect for your jacket lapel and can be worn throughout the year.

They are a great investment at just £1.65 each. These badges are individually packaged in protective plastic bags. If your delivery address is outside the UK, please Contact Me for an Airmail quote before placing your order.

 
  
 
 
 

Amazon Wish List

One of the biggest expenses I have with running M.E. Support is the cost of office supplies. I created an Amazon Wish List so that you have the choice of supporting this cause with tangible items as an alternative to making a monetary donation.

Please consider purchasing an item from the list and Amazon will dispatch it to M.E. Support on your behalf. I currently require the following items and would appreciate any help you can provide:

 
 
 
 

How to Help

M.E. Support currently has a number of Volunteer opportunities available.

M.E. Support gratefully receives Donations and welcomes corporate, family or individual Sponsorship.

Would you like to promote a product or service? Reach potential customers with an Advertising package from M.E. Support.

M.E. Support will be launching fundraising packs and media kits in Spring 2018.

News

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10 Jul 2018
Latest Metabolites Research
30 Jun 2018
Finding the Strength
23 Jun 2018
Westminster Hall Debate
5 Jun 2018
Forward-ME Meetings
18 May 2018
Merryn Crofts Inquest Ruling
15 May 2018
Article by Hannah O'Brien
12 May 2018
M.E. Support Competition
8 May 2018
BBC Documentary
28 Apr 2018
The Synergy Trial
2 Apr 2018
European Network on ME/CFS

 

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Latest News

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Page 1 of 3  > >>

10 Jul 2018
Latest Metabolites Research
30 Jun 2018
Finding the Strength
23 Jun 2018
Westminster Hall Debate
5 Jun 2018
Forward-ME Meetings
18 May 2018
Merryn Crofts Inquest Ruling
15 May 2018
Article by Hannah O'Brien
12 May 2018
M.E. Support Competition
8 May 2018
BBC Documentary
28 Apr 2018
The Synergy Trial
2 Apr 2018
European Network on ME/CFS

Diary Dates

Severe ME Day
8 August, UK

CFS/M.E. Research Collaborative
19-20 September, Bristol

CFS/ME International Conference
26-27 November, Queensland

Int. M.E. Awareness Day
12 May, Global

#MillionsMissing M.E. Protest
12th May, Global

9th Biomedical Research into ME Colloquium
TBS

14th Int. ME Conference
TBA

 
 
 

Facebook Page

The M.E. Support Facebook Page is a moderated space on the social networking service.

This is an ideal place to read and comment on the latest news, discuss and seek advice on issues affecting M.E., along with getting to know like-minded people.

Simply log in or sign up for free and click 'Like' to join this growing community.

 
 

 #MESUK

 
 
 

Competitions & Offers

Every year, M.E. Support holds a competition to send someone flowers for International May 12th Awareness Day.

Who would you nominate to receive this surprise gift? Please visit the Competition page for further details.

 
 
 

Hire Me

Through my experiences as an M.E. sufferer and webmaster, I have expanded my knowledge of health related issues, along with gaining skills in multimedia management.

I am currently Available to Hire for the following projects:

  • Reviews and sponsored posts related to Myalgic Encephalomyelitis for M.E. Support.
  • Freelance writing assignments in the area of health.
  • Content creation and content curation for websites/blogs and social media.
  • Website development and social media management.
 
 
 

Bexhill Social Group

Alongside my work here at M.E. Support, I run a Social Group for people living with M.E. and related conditions in Bexhill-on-Sea, East Sussex.

These informal monthly gatherings are a chance to meet other sufferers for friendship and support.

 

de-la-warr-pavilion

 
 
 

Louise's Gallery

Away from M.E. Support I am a keen amateur photographer. I enjoy all photographic subjects,
and I have a passion for capturing light in the natural world.

You can view a selection of my photographs, or purchase prints and greetings cards, in my online portfolio at Louise's Gallery.