MESUKblog

 

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I use this space to share personal insights, highlight new site content and topics of interest. I am also available to hire for reviews and sponsored posts related to Myalgic Encephalomyelitis. Guests regularly write for this blog; if you would like to be considered for a post, please Contact Me to discuss this further.

These medium-length posts, which range between 600 and 1,250 words, are published on the last day of each month. Please scroll down to read posts from the past twelve months. You will find a selection of popular posts from previous years in the Blog Archive.

 



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Friday 31 August 2018

I recently published an article by Barbara Smith, which has been very popular, and she’s now written this blog post about cotton balls! We all have a way of describing mental clouding; when your brain feels like quicksand, full of fog or wrapped in a ball of cotton. Barbara explains how chronic illness affected her memory and concentration, and the steps she’s taking to clear some of the fluff out of her head!

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Tuesday 31 July 2018

I am receiving a lot of enquiries about managing the summer holidays, which was a subject M.E. Support Facebook Page Administrator Kelly Ledder wrote about last year. In this month’s blog post, Kelly shares more advice on how to cope during the school holiday, and she encourages parents to support each other by sharing their tips.

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Saturday 30 June 2018

I recently received a moving article by Canadian Barbara Smith, who was diagnosed with M.E. in 2000. She openly revealed distressing events in her early life, and described the ongoing challenges of living with M.E. Barbara bravely included some upsetting subjects in her article, and I felt honoured to publish her story on M.E. Support. You can read an extract of her incredible journey in this month’s blog post.

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Thursday 31 May 2018

How can you make the best choices when living with M.E.? Our Ambassador Rochelle Hanslow describes how becoming a parent has shaped her life with chronic illness. M.E. sufferers around the world have shared their experiences during M.E. Awareness Month, and it’s important to support each other’s journeys and decisions without judgement.

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Monday 30 April 2018

Although it’s important to raise M.E. awareness throughout the year, May 12 is the day our global community unites to have our voices heard. You can do many things to mark the occasion, such as fundraising for a charity, taking part in the Millions Missing campaign, or by sharing your experience with others. The blue ribbon is the universal symbol of awareness and support for people living with Myalgic Encephalomyelitis. Ribbons are available from the M.E. Support store, along with other merchandise in ‘M.E. blue’, which help to raise much needed awareness and funds. In this month’s blog post, M.E. Support Ambassador Rochelle Hanslow reviews my online shop and the products.

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Saturday 31 March 2018

Seventeen years ago tomorrow, my brother Stuart helped me create M.E. Support, having introduced me to the internet. There was limited information about M.E. on the web, and personal experiences seemed to be restricted to forums, therefore I decided to write ‘M.E. My Story’. This was an emotionally challenging process, and I was certainly nervous about publishing it, but messages instantly started arriving from grateful readers. It is incredibly important to share our stories, as they reassure and support fellow sufferers, along with educating the greater public. Here you can read an extract of my updated article, along with a review by M.E. Support Ambassador Rochelle Hanslow.

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Wednesday 28 February 2018

Twenty-three-year-old Rachel Aylward from Sussex has been living with M.E. for ten years. Earlier this month, she wrote a letter to her chronic illness and posted it on her blog, which has been shared widely on social media. I recently had the pleasure of meeting Rachel, and having become ill as a teenager myself, her experience and concerns were all too familiar. Rachel’s letter is a must read for fellow young M.E. sufferers, although anyone with a chronic illness will be able to relate to her words, and it can also give others an insight into living with long-term conditions.

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Wednesday 31 January 2018

For this month’s blog post, I have decided to write about a book that I’ve just read. Make Your Bed was written by Admiral William McRaven, and in it he describes the lessons he learnt during Navy SEAL training. The ten principles have helped him overcome challenges not only in his career, but also throughout his life. You might wonder how his experiences could have any bearing on living with M.E., but wisdom is universal; practical advice and words of encouragement can help in life’s darkest moments.

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Sunday 31 December 2017

Earlier this month, an M.E. related item appeared in the news which resulted in a heated debate. The global M.E. community is united and strong, yet at times it can be surprisingly hostile. Support and acceptance are vital aspects of managing chronic illness, but with the challenges of a new year dawning, it’s important to remind ourselves of this all the more. M.E. Support Ambassador Rochelle Hanslow followed the discussion, and she now approaches the subject in a more neutral way.

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Thursday 30 November 2017

Earlier this month, my brother Stuart and I went to our local screening of Unrest, an award-winning documentary film about Myalgic Encephalomyelitis. Jennifer Brea is about to marry the love of her life when she’s struck down by a fever that leaves her bedridden. When doctors tell her “it’s all in her head”, she turns her camera on herself and her community as she looks for answers and fights for a cure. Although it was emotionally challenging to watch, we are pleased to share our views on this groundbreaking film with you.

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Tuesday 31 October 2017
What did you think when you read that title? Some of you might be shocked or think it’s an inappropriate thing to talk about. This is obviously an upsetting topic, but sadly many of you will be able to relate to it. This is my first blog post in six months, and the subject of suicide has been prominent throughout that time. I have received weekly messages from people at their wit’s end, and on a personal note, Iife as a suicide attempt survivor has become increasingly difficult. Are the challenges of living with M.E. reaching an all-time high, or are people becoming more comfortable with asking for help?
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Saturday 30 September 2017

As a series of contributions by guest bloggers draws to a close, I thought we should touch on chronic illness from the male perspective. Statistically, M.E. affects more women than men, and in addition, men are more reluctant to talk about their health. A friend of mine, who wishes to remain anonymous, has agreed to share his experience with us. His open and honest article is entitled The Invisible Man, and you can read an extract of it in this month’s blog post.

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News

13 Aug 2018
M.E. Organisations
10 Jul 2018
Latest Metabolites Research
23 Jun 2018
Westminster Hall Debate
5 Jun 2018
Forward-ME Meetings
18 May 2018
Merryn Crofts Inquest Ruling
15 May 2018
Article by Hannah O'Brien
12 May 2018
M.E. Support Competition
8 May 2018
BBC Documentary
28 Apr 2018
The Synergy Trial

 
 
 

News

13 Aug 2018
M.E. Organisations
10 Jul 2018
Latest Metabolites Research
23 Jun 2018
Westminster Hall Debate
5 Jun 2018
Forward-ME Meetings
18 May 2018
Merryn Crofts Inquest Ruling
15 May 2018
Article by Hannah O'Brien
12 May 2018
M.E. Support Competition
8 May 2018
BBC Documentary
28 Apr 2018
The Synergy Trial