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International May 12th Awareness Day

 

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The clock is now counting down to International May 12th Awareness Day 2019.

Next year, 2019, marks the 27th anniversary of International May 12th Awareness Day. The idea originated with Thomas Michael Hennessy, Jr., the founder of Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases (no longer active). Tom Hennessy was based in the USA but understood that it needed to be an international event; he designated May 12 as the International Awareness Day for the spectrum of illnesses he called Chronic Immunological and Neurological Diseases (CIND).

May 12 was chosen as it coincided with the birth date of Florence Nightingale, the celebrated English social reformer and statistician, and the founder of modern nursing. Nightingale became chronically ill in her mid-thirties after returning from the Crimean War; the M.E.-like illness often left her bedridden during the last 50 years of her life. You will find a more detailed account in A Short History of M.E.

Tom Hennessy included Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome and Chronic Fatigue and Immune Dysfunction Syndrome)FibromyalgiaGulf War Syndrome and Multiple Chemical Sensitivity under the CIND umbrella. These illnesses, characterised by cognitive problems, chronic muscle and joint pain, extremely poor stamina, and numerous other symptoms, afflict people around the world in alarming numbers.

May 12 efforts have largely been low-key and undertaken by individuals or individual organisations. Due to the mandates of these organisations the awareness efforts have, for the most part, focussed on only one of the illnesses. From the beginning of 1993 various M.E. organisations were behind the idea, and it was subsequently highlighted at the First World Congress on Chronic Fatigue Syndrome and Related Disorders in 1995. This was instrumental in the campaign being adopted internationally for
Myalgic Encephalomyelitis. The universal symbol of the blue ribbon is worn to spread awareness and support sufferers.

Awareness continues to increase throughout the world, and Severe M.E. Day was launched in 2013 by the 25% ME Group. August 8 is a day to remember everyone who is suffering or who has ever suffered from severe Myalgic Encephalomyelitis. A rainbow was chosen as the emblem for this day to symbolise a bridge from ignorance to knowledge.


On Monday 9 September 2013, Tom Hennessy passed away in Florida at the age of 59, after a 25-year battle with Myalgic Encephalomyelitis (Obituary).

Awareness ribbons and other products are available to purchase from the M.E. Support Online Shop. Free promotional material is also available to download or order from the Publicity page. You can follow this international event via the Newsletter and Facebook Page.

 
 
 

 
 
 

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Most Popular

Top 5 articles for the week of May 14, 2018:

  1. The Symptoms of Myalgic Encephalomyelitis
  2. What is M.E.?
  3. Myalgic Encephalomyelitis Diagnosis, Treatment & Prognosis
  4. M.E. Support Competition
  5. Go Blue for M.E.
 
 

Trending Topics

Lyme Disease has received a lot of media coverage recently. The subject is covered on M.E. Support in Lyme Disease / Borreliosis & M.E. in the United Kingdom. For additional help and support, please visit Lyme Disease Action (UK) or LymeDisease.org (USA).

I am currently receiving a lot of enquiries about Candida. Please take a moment to read Candida & M.E. by Medical Herbalist Jo Dunbar. You are welcome to contact Jo at her clinic for more guidance.

 
 
 

Unrest Review

My brother Stuart and I went to our local screening of Unrest recently, an award-winning documentary film about Myalgic Encephalomyelitis.

Jennifer Brea is about to marry the love of her life when she’s struck down by a fever that leaves her bedridden. When doctors tell her “it’s all in her head”, she turns her camera on herself and her community as she looks for answers and fights for a cure.

Although it was emotionally challenging to watch, we are pleased to share our views on this groundbreaking film with you.

 
 
 

Featured Product

These lovely enamel Pin Badges have been specially cast for M.E. Support.

This plain blue ribbon design is suitable for Myalgic Encephalomyelitis, Fibromyalgia, Gulf War Syndrome and Multiple Chemical Sensitivity. The badges are 25mm long and measure 14mm at the widest point (image not actual size). They have a nickel finish and a secure clutch pin fitting. These subtle badges are perfect for your jacket lapel and can be worn throughout the year.

They are a great investment at just £1.65 each. These badges are individually packaged in protective plastic bags. If your delivery address is outside the UK, please Contact Me for an Airmail quote before placing your order.

 
  
 
 
 

Amazon Wish List

One of the biggest expenses I have with running M.E. Support is the cost of office supplies. I created an Amazon Wish List so that you have the choice of supporting this cause with tangible items as an alternative to making a monetary donation.

Please consider purchasing an item from the list and Amazon will dispatch it to M.E. Support on your behalf. I currently require the following items and would appreciate any help you can provide:

 
 
 
 

How to Help

M.E. Support currently has a number of Volunteer opportunities available.

M.E. Support gratefully receives Donations and welcomes corporate, family or individual Sponsorship.

Would you like to promote a product or service? Reach potential customers with an Advertising package from M.E. Support.

M.E. Support will be launching fundraising packs and media kits in Spring 2018.

News

Page 1 of 3  > >>

15 May 2018
Article by Hannah O'Brien
12 May 2018
M.E. Support Competition
8 May 2018
BBC Documentary
5 May 2018
Website Down Time
30 Apr 2018
Go Blue for M.E.
28 Apr 2018
The Synergy Trial
21 Apr 2018
Forward-ME Meetings
2 Apr 2018
European Network on ME/CFS
1 Apr 2018
Anniversary Statement
28 Mar 2018
Latest Rituximab Study

 

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Latest News

Subscribe to the free Newsletter

Page 1 of 3  > >>

15 May 2018
Article by Hannah O'Brien
12 May 2018
M.E. Support Competition
8 May 2018
BBC Documentary
5 May 2018
Website Down Time
30 Apr 2018
Go Blue for M.E.
28 Apr 2018
The Synergy Trial
21 Apr 2018
Forward-ME Meetings
2 Apr 2018
European Network on ME/CFS
1 Apr 2018
Anniversary Statement
28 Mar 2018
Latest Rituximab Study

Diary Dates

8th Biomedical Research into ME Colloquium
30-31 May, London

13th Int. ME Conference
1 June, London

Severe ME Day
8 August, UK

CFS/M.E. Research Collaborative
19-20 September, Bristol

CFS/ME International Conference
26-27 November, Queensland

Int. M.E. Awareness Day
12 May, Global

#MillionsMissing M.E. Protest
12th May, Global

 
 
 

Facebook Page

The M.E. Support Facebook Page is a moderated space on the social networking service.

This is an ideal place to read and comment on the latest news, discuss and seek advice on issues affecting M.E., along with getting to know like-minded people.

Simply log in or sign up for free and click 'Like' to join this growing community.

 
 

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Competitions & Offers

Every year, M.E. Support holds a competition to send someone flowers for International May 12th Awareness Day.

Who would you nominate to receive this surprise gift? Please visit the Competition page for further details.

 
 
 

Hire Me

Through my experiences as an M.E. sufferer and webmaster, I have expanded my knowledge of health related issues, along with gaining skills in multimedia management.

I am currently Available to Hire for the following projects:

  • Reviews and sponsored posts related to Myalgic Encephalomyelitis for M.E. Support.
  • Freelance writing assignments in the area of health.
  • Content creation and content curation for websites/blogs and social media.
  • Website development and social media management.
 
 
 

Bexhill Social Group

Alongside my work here at M.E. Support, I run a Social Group for people living with M.E. and related conditions in Bexhill-on-Sea, East Sussex.

These informal monthly gatherings are a chance to meet other sufferers for friendship and support.

 

de-la-warr-pavilion

 
 
 

Louise's Gallery

Away from M.E. Support I am a keen amateur photographer. I enjoy all photographic subjects,
and I have a passion for capturing light in the natural world.

You can view a selection of my photographs, or purchase prints and greetings cards, in my online portfolio at Louise's Gallery.

Diary Dates

8th Biomedical Research into ME Colloquium
30-31 May, London

13th Int. ME Conference
1 June, London

Severe ME Day
8 August, UK

CFS/M.E. Research Collaborative
19-20 September, Bristol

CFS/ME International Conference
26-27 November, Queensland

Int. M.E. Awareness Day
12 May, Global

#MillionsMissing M.E. Protest
12th May, Global