Volunteer with M.E. Support    Meet the Volunteers

 
 
 

Thank you for considering volunteering with M.E. Support. I would not be able to run this website without the assistance of my wonderful volunteers. It can be hugely rewarding and your skills will mean that you can make a real difference to the M.E. community.

Here you will find information on how to become an M.E. Support volunteer and what you can do to help. You can also get to know the volunteers and learn about the importance of helping those affected by M.E.

"Alone we can do so little; together we can do so much."
Helen Keller

 

 
Volunteer with M.E. Support

 

M.E. Support currently has the following volunteer opportunities available. These jobs can be done from home using a personal computer with an internet connection. As an M.E. sufferer I understand limitations, but any help you can provide will truly count. Please Contact Me if you would like to volunteer in any of these areas:

 

  • Portrait Photographer

    I am looking for a portrait photographer based in East Sussex. I require a selection of portraits for both M.E. Support and the press. The images would be fully credited and linked to your own website.

  • Reviewers

    Do you have an M.E. related blog, vlog, website or group? Would you consider reviewing M.E. Support and promoting this long-established site? In return you will receive a reciprocal link and free Awareness Pack worth £20.00!

  • Video Producer

    Do you have experience in video production? I require a promotional screencast tour of M.E. Support. The video would be fully credited and linked to your own website.

  • Web Application Developer

    Do you have experience in web application development? I am looking for someone to help me make M.E. Support more accessible. The apps would be fully credited and linked to your own website.

  • Writers

    Would you like to write an article for M.E. Support? Personal stories are always welcome and no writing experience is necessary. You can browse contributions from other authors in the Articles Index. Alternatively, if you can help with any of the following subjects, please Contact Me for further details:

    - Allergies, Food Intolerances & Multiple Chemical Sensitivities
    - Gulf War Syndrome
    - Myalgic Encephalomyelitis & Depression


 


Meet the Volunteers

 

I am proud to have many enthusiastic volunteers who donate their time in a variety of ways. Whether they can offer a regular commitment, one-off, occasional or annual help, every volunteer has a unique contribution to make. Here key team members introduce themselves, explain why they got involved and how they help:

 

 
 

OLIVER ROOKE

IT Technician

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“Hi there, my name is Oliver, and I’ve been volunteering for M.E. Support since 2005. In that time I have managed the migration from the Bigstep site, which M.E. Support was previously hosted on, to its own domain name. I have also installed, upgraded and maintained the Content Management System upon which the M.E. Support website is run. In addition, I have provided Louise with technical assistance on the website as needed. I became ill with M.E. at the age of 19, and I have welcomed the opportunity to use my IT skills to support the website. Please direct all technical enquiries to me at the address above.”


LORRAINE SARGENT

Administrator

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“Hello. My name is Lorraine and I am Louise’s Mum and Carer. I ran my own business for over thirty years and now use these skills at M.E. Support. There is a lot involved with running M.E. Support and Louise often struggles to keep on top of the work. I am extremely proud of my daughter’s achievements and enjoy working alongside her. Please take a moment to read my article One Mother’s Story and feel free to contact me anytime.”


   

LEANNE BRAGGER

Public Relations Officer

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 "Hi there, I'm Leanne and I was diagnosed with M.E. in 2014. I went from being a busy mum of one, and degree student, to being bedbound and feeling alone with my illness. I found M.E. Support, read all the information and articles by fellow sufferers, and soon realised that I wasn't alone. I even wrote My M.E Journey: Feeling Hopeless to Feeling Positive for the site! I am now thrilled to be volunteering for M.E. Support as Public Relations Officer. I am keen to promote awareness of this invisible illness, and to let others know that they are never alone. "

Leanne is on leave until further notice. Please direct your PR enquiries to Louise Sargent.


 

ROCHELLE HANSLOW
 
Ambassador

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 "Hello. I'm Rochelle and I was finally diagnosed with M.E. and Fibromyalgia in February 2013, after years of back and forth with doctors. I'm a wife, dog owner, full time 'Spoonie', and I became a Mum for the first time in January. I am currently an ambassador for ME Research UK. I found M.E. Support whilst looking for information when I was diagnosed and found it all really helpful. Louise is so friendly and always kept in touch. Louise and the team have done amazing work to raise awareness of M.E. and I am keen to support M.E. Support UK in any way I can. I want to make the most of the time I have, thanks to these illnesses, and thought what better way than to raise awareness and give a real voice to this illness. That's one of the many things I think M.E. Support does; it gives a real representation of this illness, and I am happy to be on board. You can read more about my experience and campaigning in You Are Not Your Illness. Please direct all promotional enquiries to me at the address above.


   

DANIEL HANSLOW

Graphic Designer

Habberley Technical

 “Hi, I am Dan. I am a Graphic Designer and trained IT Technician. I am a husband and we had our first child in the start of 2016. I am a big petrol head but also enjoy casual gaming and photography. My wife Rochelle was diagnosed with M.E. and Fibromyalgia in 2013 and has subsequently become the Ambassador for M.E. Support. We have both found M.E. Support and the team behind it to be of great help throughout diagnosis and it’s been a great help to have people to help point us in the right directions. I am glad to be able to offer my expertise to Louise and the team at M.E. Support and am happy to be a part of the team.


   

ANDREW BUGGEY

Freelance Proofreader

ACB Proofreading

  

"I set up my freelance proofreading business, ACB Proofreading, in 2011 after I retired from the Metropolitan Police Service. I have trained with the Publishing Training Centre and the Society for Editors and Proofreaders, and now proofread a variety of publications, both printed and electronic, for businesses and individuals.
My wife has had M.E. since she was a teenager. After spending so many years working shifts or being tied to strict duty rosters, and struggling to balance the demands of my job with the need to support my wife, I now have the flexibility to fit my work around my wife’s needs and give her the support she requires.
When I saw the request for a volunteer proofreader, I saw an ideal opportunity to use my professional skills to help Louise and the work she does through M.E. Support for all those who suffer from M.E., who care for people with M.E., or who just want to learn more about the illness.


   

MELANIE JANE EDGAR

Blogger

Melanie wrote Learning to Live with M.E. in January 2015. She will launching a research blog for M.E. Support later this year.


  KELLY LEDDER

Facebook Administrator

Private Message Kelly

"Hello, I am Kelly and I developed M.E. after suffering from the Epstein Barr Virus in 2005. I found M.E. Support when I was trying to learn more about my condition, after not receiving much support from my G.P. In those 10 years, I have gone from spending days on the sofa drifting in and out of sleep, to leading a more active life. I have a young son and another baby on the way. I am a Social Media Account Manager and wanted to volunteer my services to help others, and to provide factual information for those who are as confused as I was, and to offer Louise my support."


  CHLOE LEANNE BROOKS

Facebook Editor
 

Private Message Chloe

 "Hello, my name’s Chloe and I’m 16 years old. I have been living with Severe M.E. since 2011. I chose to become a volunteer for M.E. Support so that I could help and advise people in the same situation as me. I feel like I have gained knowledge and experience over the last 4 years of fighting M.E. and other similar illnesses. You can read more about my experience in Inside I'm Dancing.
My aim is to spread hope and happiness to those who endure chronic pain, along with helping their parents and carers. Comforting those who feel lost, and opening them up to a community where everyone understands, is incredibly important to me. It is very rewarding to educate people about this terrible illness.
It feels wonderful to be a part of the M.E. Support team who have personally helped me to overcome daily struggles. I would now like to give something back as my way of saying thank you."


   

LAURA MCGREGOR

Facebook Moderator

Private Message Laura

 

"Hello, My name is Laura. I'm 28 years old and also a mum to a daughter who is 8. I was diagnosed with M.E. in 2012. I chose to become part of M.E. Support so that I could help and advise people in the same situation as me. I feel like I have gained knowledge and experience over the last 5 years of battling M.E. and other illnesses. I want to be able to help and advise people who might be where I was back then and requiring some support."


 

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Most Popular

Top 5 articles for the week of May 14, 2018:

  1. The Symptoms of Myalgic Encephalomyelitis
  2. What is M.E.?
  3. Myalgic Encephalomyelitis Diagnosis, Treatment & Prognosis
  4. M.E. Support Competition
  5. Go Blue for M.E.
 
 

Trending Topics

Lyme Disease has received a lot of media coverage recently. The subject is covered on M.E. Support in Lyme Disease / Borreliosis & M.E. in the United Kingdom. For additional help and support, please visit Lyme Disease Action (UK) or LymeDisease.org (USA).

I am currently receiving a lot of enquiries about Candida. Please take a moment to read Candida & M.E. by Medical Herbalist Jo Dunbar. You are welcome to contact Jo at her clinic for more guidance.

 
 
 

Unrest Review

My brother Stuart and I went to our local screening of Unrest recently, an award-winning documentary film about Myalgic Encephalomyelitis.

Jennifer Brea is about to marry the love of her life when she’s struck down by a fever that leaves her bedridden. When doctors tell her “it’s all in her head”, she turns her camera on herself and her community as she looks for answers and fights for a cure.

Although it was emotionally challenging to watch, we are pleased to share our views on this groundbreaking film with you.

 
 
 

Featured Product

These lovely enamel Pin Badges have been specially cast for M.E. Support.

This plain blue ribbon design is suitable for Myalgic Encephalomyelitis, Fibromyalgia, Gulf War Syndrome and Multiple Chemical Sensitivity. The badges are 25mm long and measure 14mm at the widest point (image not actual size). They have a nickel finish and a secure clutch pin fitting. These subtle badges are perfect for your jacket lapel and can be worn throughout the year.

They are a great investment at just £1.65 each. These badges are individually packaged in protective plastic bags. If your delivery address is outside the UK, please Contact Me for an Airmail quote before placing your order.

 
  
 
 
 

Amazon Wish List

One of the biggest expenses I have with running M.E. Support is the cost of office supplies. I created an Amazon Wish List so that you have the choice of supporting this cause with tangible items as an alternative to making a monetary donation.

Please consider purchasing an item from the list and Amazon will dispatch it to M.E. Support on your behalf. I currently require the following items and would appreciate any help you can provide:

 
 
 
 

How to Help

M.E. Support currently has a number of Volunteer opportunities available.

M.E. Support gratefully receives Donations and welcomes corporate, family or individual Sponsorship.

Would you like to promote a product or service? Reach potential customers with an Advertising package from M.E. Support.

M.E. Support will be launching fundraising packs and media kits in Spring 2018.

News

Page 1 of 3  > >>

15 May 2018
Article by Hannah O'Brien
12 May 2018
M.E. Support Competition
8 May 2018
BBC Documentary
5 May 2018
Website Down Time
30 Apr 2018
Go Blue for M.E.
28 Apr 2018
The Synergy Trial
21 Apr 2018
Forward-ME Meetings
2 Apr 2018
European Network on ME/CFS
1 Apr 2018
Anniversary Statement
28 Mar 2018
Latest Rituximab Study

 

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Latest News

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Page 1 of 3  > >>

15 May 2018
Article by Hannah O'Brien
12 May 2018
M.E. Support Competition
8 May 2018
BBC Documentary
5 May 2018
Website Down Time
30 Apr 2018
Go Blue for M.E.
28 Apr 2018
The Synergy Trial
21 Apr 2018
Forward-ME Meetings
2 Apr 2018
European Network on ME/CFS
1 Apr 2018
Anniversary Statement
28 Mar 2018
Latest Rituximab Study

Diary Dates

8th Biomedical Research into ME Colloquium
30-31 May, London

13th Int. ME Conference
1 June, London

Severe ME Day
8 August, UK

CFS/M.E. Research Collaborative
19-20 September, Bristol

CFS/ME International Conference
26-27 November, Queensland

Int. M.E. Awareness Day
12 May, Global

#MillionsMissing M.E. Protest
12th May, Global

 
 
 

Facebook Page

The M.E. Support Facebook Page is a moderated space on the social networking service.

This is an ideal place to read and comment on the latest news, discuss and seek advice on issues affecting M.E., along with getting to know like-minded people.

Simply log in or sign up for free and click 'Like' to join this growing community.

 
 

 #MESUK

 
 
 

Competitions & Offers

Every year, M.E. Support holds a competition to send someone flowers for International May 12th Awareness Day.

Who would you nominate to receive this surprise gift? Please visit the Competition page for further details.

 
 
 

Hire Me

Through my experiences as an M.E. sufferer and webmaster, I have expanded my knowledge of health related issues, along with gaining skills in multimedia management.

I am currently Available to Hire for the following projects:

  • Reviews and sponsored posts related to Myalgic Encephalomyelitis for M.E. Support.
  • Freelance writing assignments in the area of health.
  • Content creation and content curation for websites/blogs and social media.
  • Website development and social media management.
 
 
 

Bexhill Social Group

Alongside my work here at M.E. Support, I run a Social Group for people living with M.E. and related conditions in Bexhill-on-Sea, East Sussex.

These informal monthly gatherings are a chance to meet other sufferers for friendship and support.

 

de-la-warr-pavilion

 
 
 

Louise's Gallery

Away from M.E. Support I am a keen amateur photographer. I enjoy all photographic subjects,
and I have a passion for capturing light in the natural world.

You can view a selection of my photographs, or purchase prints and greetings cards, in my online portfolio at Louise's Gallery.

Diary Dates

8th Biomedical Research into ME Colloquium
30-31 May, London

13th Int. ME Conference
1 June, London

Severe ME Day
8 August, UK

CFS/M.E. Research Collaborative
19-20 September, Bristol

CFS/ME International Conference
26-27 November, Queensland

Int. M.E. Awareness Day
12 May, Global

#MillionsMissing M.E. Protest
12th May, Global